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Developing Cultural Responsive Care: Children with Cleft Lip and Palate and their Families
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In: ETSU Faculty Works (2021)
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| 2 |
Cleft Lip and/or Palate in Infants Prenatally Exposed to Opioids
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In: ETSU Faculty Works (2021)
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A Model for Cross-Cultural Translation and Adaptation of Speech-Language Pathology Assessment Measures: Application to the Focus on the Outcomes of Communication Under Six (Focus © )
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In: ETSU Faculty Works (2021)
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| 4 |
Can I Say Something Now? Family-and-Child-Centered Care in Cleft Lip and Palate
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In: ETSU Faculty Works (2021)
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A Model for Cross-Cultural Translation and Adaptation of Speech-Language Pathology Assessment Measures: Application to the Focus on the Outcomes of Communication Under Six (FOCUS©)
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In: ETSU Faculty Works (2021)
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| 6 |
Cleft Lip and/or Palate in Infants Prenatally Exposed to Opioids
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In: ETSU Faculty Works (2021)
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| 7 |
Future Directions in Transition of Care for Young Adults With Cleft Lip and Palate: Clinical Education
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In: ETSU Faculty Works (2020)
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| 8 |
Listeners’ Attitudes Towards Young Women Using Glottal Fry
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In: ETSU Faculty Works (2020)
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| 9 |
Multicultural/Multilingual Issues in CSD Research Methods Coursework: A Neglected Topic?
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In: Appalachian Student Research Forum (2020)
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| 10 |
Imagine More Diversity in CSD Research Methods Coursework
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In: ETSU Faculty Works (2019)
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| 11 |
Transition of Care for Young Adults With Cleft Lip and Palate: We’ve Got Some Growing up to Do !
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In: ETSU Faculty Works (2019)
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Abstract:
Background and purpose: For many young adults with cleft lip and palate (CLP), traditional team services come to an abrupt end at age 18, necessitating a transition from child-centered to adult-centered care. There is a shift in focus from the cleft itself and clinician reported outcomes to patient self-report about the perceived impact of the cleft. Transition also befalls the parents and team providers. We propose an evidence-based person-centered delivery model of care using the concepts of the International Classification of Functioning, Disability, and Health (ICF) (WHO, 2001, 2004). The ICF represents a shift from health condition and body impairment-centered descriptions of disability to a more comprehensive documentation, including a wider range of functionality indicators. This model of Transition of Care is proposed to facilitate a positive shift from pediatric to adult-centered care. It is timely for teams to embrace the concept of transition of care, and to provide services that recognize the importance of personal and environmental factors in facilitating holistic transition planning and service delivery (ICF, WHO, 2001), which are developmentally appropriate to young adults with CLP (Farre & McDonagh, 2017; Farre et al., 2016).The purpose of this proposed evidence based model is to provide a framework for redesigning the way services are delivered to a young adult with CLP. The concepts of this model are relevant to all specialists on the cleft palate team. The aim of this presentation is to create an awareness of young adults with CL/P who are generally a neglected population in terms of team care and to suggest a new and fresh approach to service delivery to these individuals with the emphasis on clinical resources.Content: A brief overview of adolescents and young adults with CLP and their multidisciplinary needs will be presented. A framework for a holistic service delivery model developed by Vallino and Louw (2017) will be presented. We will suggest strategies for teams to improve the care for young adults with CLP and share a clinical toolbox comprised of a compendium of resources.Conclusion: The proposed Service Delivery Model for young adults with CLP necessitates a change in perspective that embraces constructs such as person-centered care in order to ensure the best outcomes for these individuals. These concepts can be applied by all cleft palate team members. Adopting a life span perspective reinforces the understanding that living with and managing CLP is dynamic and that transition is a process rather than a point in a person's life.
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Keyword:
Audiology and Speech-Language Pathology; cleft lip and palate; Musculoskeletal Diseases; Speech Pathology and Audiology
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URL: https://dc.etsu.edu/etsu-works/7761
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| 12 |
Transition of Care for Young Adults With Cleft Lip and Palate: Clinical Toolbox for Teams
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In: ETSU Faculty Works (2019)
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| 13 |
Personal Commitment Statements: Encouraging the Clinical Application of Continuing Professional Development Events for Health Practitioners in Lmics
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In: ETSU Faculty Works (2019)
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| 14 |
Neonatal Intensive Care Unit Speech-Language Pathologists’ Perception of Infants With Neonatal Abstinence Syndrome
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In: ETSU Faculty Works (2019)
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| 15 |
Referrals to Cleft Lip & Palate Teams: Practices of School-Based Speech- Language Pathologists
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In: ETSU Faculty Works (2019)
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| 16 |
Clinician-Research Collaboration: Determining Research Interests & Needs of Clinicians in the Tri-Cities, Tennessee
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In: Appalachian Student Research Forum (2019)
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| 17 |
Clinician-Research Collaboration: Determining Research Interests and Needs of Clinicians in the Tri-Cities, TN
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In: ETSU Faculty Works (2018)
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| 18 |
SLP Students Perceptions of the Role of SLPs in Treating. People Living With HIV/AIDS
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In: ETSU Faculty Works (2018)
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| 19 |
Mixed-Methods Research: A Tutorial for Speech-Language Therapists and Audiologists in South Africa
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In: ETSU Faculty Works (2018)
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| 20 |
Person Centered Cleft Care: Evolutionary Practice by Giving Our Clients a Voice
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In: ETSU Faculty Works (2018)
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