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Utilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: The RELEASE database of aphasia after stroke
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In: Research outputs 2014 to 2021 (2022)
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An aphasia research agenda – a consensus statement from the collaboration of aphasia trialists
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In: Research outputs 2014 to 2021 (2022)
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Utilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: the RELEASE database of aphasia after stroke
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WILLIAMS, Louise R.; ALI, Myzoon; VANDENBERG, Kathryn; WILLIAMS, Linda J.; ABO, Masahiro; Becker, Frank; BOWEN, Audrey; BRANDENBURG, Caitlin; BREITENSTEIN, Caterina; BRUEHL, Stefanie; COPLAND, David A.; CRANFILL, Tamara B.; DI PIETRO-BACHMANN, Marie; ENDERBY, Pamela; FILLINGHAM, Joanne; GALLI, Federica Lucia; GANDOLFI, Marialuisa; Glize, Bertrand; GODECKE, Erin; Hawkins, Neil; HILARI, Katerina; HINCKLEY, Jacqueline; Horton, Simon; Howard, David; JAECKS, Petra; Jefferies, Elizabeth; JESUS, Luis M. T.; Kambanaros, Maria; KANG, Eun Kyoung; KHEDR, Eman M.; KONG, Anthony Pak-Hin; KUKKONEN, Tarja; Laganaro, Marina; RALPH, Matthew A. Lambon; LASKA, Ann Charlotte; LEEMANN, Beatrice; LEFF, Alexander P.; LIMA, Roxele Ribeiro; Lorenz, Antje; MACWHINNEY, Brian; MARSHALL, Rebecca Shisler; MATTIOLI, Flavia; MAVIS, Iiknur; MEINZER, Marcus; NILIPOUR, Reza; NOE, Enrique; PAIK, Nam Jong; PALMER, Rebecca; PAPATHANASIOU, Ilias; PATRICIO, Brigida F.; MARTINS, Isabel Pavao; PRICE, Cathy; JAKOVAC, Tatjana Prizl; ROCHON, Elizabeth; ROSE, Miranda L.; Rosso, Charlotte; RUBI-FESSEN, Ilona; RUITER, Marina B.; SNELL, Claerwen; STAHL, Benjamin; SZAFLARSKI, Jerzy P.; THOMAS, Shirley A.; VAN DE SANDT-KOENDERMAN, Mieke; VAN DER MEULEN, Ineke; VISCH-BRINK, Evy; WORRALL, Linda; WRIGHT, Heather Harris; BRADY, Marian C.; COLLABORATORS, RELEASE
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In: ISSN: 0268-7038 ; EISSN: 1464-5041 ; Aphasiology ; https://hal.archives-ouvertes.fr/hal-03528818 ; Aphasiology, Taylor & Francis (Routledge), 2021, ⟨10.1080/02687038.2021.1897081⟩ (2021)
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Abstract:
Background: Collation of aphasia research data across settings, countries and study designs using big data principles will support analyses across different language modalities, levels of impairment, and therapy interventions in this heterogeneous population. Big data approaches in aphasia research may support vital analyses, which are unachievable within individual trial datasets. However, we lack insight into the requirements for a systematically created database, the feasibility and challenges and potential utility of the type of data collated. Aim: To report the development, preparation and establishment of an internationally agreed aphasia after stroke research database of individual participant data (IPD) to facilitate planned aphasia research analyses. Methods: Data were collated by systematically identifying existing, eligible studies in any language (>= 10 IPD, data on time since stroke, and language performance) and included sourcing from relevant aphasia research networks. We invited electronic contributions and also extracted IPD from the public domain. Data were assessed for completeness, validity of value-ranges within variables, and described according to pre-defined categories of demographic data, therapy descriptions, and language domain measurements. We cleaned, clarified, imputed and standardised relevant data in collaboration with the original study investigators. We presented participant, language, stroke, and therapy data characteristics of the final database using summary statistics. Results: From 5256 screened records, 698 datasets were potentially eligible for inclusion; 174 datasets (5928 IPD) from 28 countries were included, 47/174 RCT datasets (1778 IPD) and 91/174 (2834 IPD) included a speech and language therapy (SLT) intervention. Participants' median age was 63 years (interquartile range [53, 72]), 3407 (61.4%) were male and median recruitment time was 321 days (IQR 30, 1156) after stroke. IPD were available for aphasia severity or ability overall (n = 2699; 80 datasets), naming (n = 2886; 75 datasets), auditory comprehension (n = 2750; 71 datasets), functional communication (n = 1591; 29 datasets), reading (n = 770; 12 datasets) and writing (n = 724; 13 datasets). Information on SLT interventions were described by theoretical approach, therapy target, mode of delivery, setting and provider. Therapy regimen was described according to intensity (1882 IPD; 60 datasets), frequency (2057 IPD; 66 datasets), duration (1960 IPD; 64 datasets) and dosage (1978 IPD; 62 datasets). Discussion: Our international IPD archive demonstrates the application of big data principles in the context of aphasia research; our rigorous methodology for data acquisition and cleaning can serve as a template for the establishment of similar databases in other research areas.
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Keyword:
[SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie; Aphasia; Individual participant data; Rehabilitation reporting standards; Speech and language therapy; Stroke
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URL: https://hal.archives-ouvertes.fr/hal-03528818
https://hal.archives-ouvertes.fr/hal-03528818/file/BPH_Aphasiology_2021_Williams.pdf
https://hal.archives-ouvertes.fr/hal-03528818/document
https://doi.org/10.1080/02687038.2021.1897081
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Predictors of Poststroke Aphasia Recovery: A Systematic Review-Informed Individual Participant Data Meta-Analysis
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In: ISSN: 0039-2499 ; EISSN: 1524-4628 ; Stroke ; https://hal.archives-ouvertes.fr/hal-03277820 ; Stroke, American Heart Association, 2021, 52 (5), pp.1778-1787. ⟨10.1161/strokeaha.120.031162⟩ (2021)
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Predictors of poststroke aphasia recovery: a systematic review-informed individual participant data meta-analysis
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Predictors of Poststroke Aphasia Recovery: A Systematic Review-Informed Individual Participant Data Meta-Analysis ...
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Predictors of Poststroke Aphasia Recovery A Systematic Review-Informed Individual Participant Data Meta-Analysis
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An aphasia research agenda - a consensus statement from the collaboration of aphasia trialists.
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In: Ali, Myzoon Soroli, Efstathia Jesus, Luis M. T. Cruice, Madeline Isaksen, Jytte Visch-Brink, Evy Grohmann, Kleanthes K. Jagoe, C. Kukkonen, Tarja Varlokosta, Spyridoula Hernández Sacristán, Carlos Rosell Clari, Vicent Palmer, Rebecca Martinez Ferreiro, Silvia Godecke, Erin Wallace, Sarah J. McMenamin, Ruth Copland, David Breitenstein, Caterina Bowen, Audrey Laska, Ann-Charlotte Hilari, Katerina Brady, Marian C. 2021 An aphasia research agenda - a consensus statement from the collaboration of aphasia trialists. Aphasiology 1 21 (2021)
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RELEASE: A protocol for a systematic review based, individual participant data, meta- and network meta-analysis, of complex speech-language therapy interventions for stroke-related aphasia
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In: Research outputs 2014 to 2021 (2020)
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RELEASE: a protocol for a systematic review based, individual participant data, meta- and network meta-analysis, of complex speech-language therapy interventions for stroke-related aphasia
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RELEASE: a protocol for a systematic review based, individual participant data, meta- and network meta-analysis, of complex speech-language therapy interventions for stroke-related aphasia
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RELEASE: a protocol for a systematic review based, individual participant data, meta- and network meta-analysis, of complex speech-language therapy interventions for stroke-related aphasia
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Tidier descriptions of speech and language therapy interventions for people with aphasia; consensus from the release collaboration
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In: Research outputs 2014 to 2021 (2018)
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Who participates in aphasia research?: an analysis of the REhabilitation and recovery of peopLE with Aphasia after StrokE (RELEASE) data set
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Aphasia and dysarthria in acute stroke: recovery and functional outcome
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Utilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: the RELEASE database of aphasia after stroke
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