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The effects of augmentative and alternative communication cursor click modality on language complexity and user perceptions
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The effect of laryngeal manual therapy and laryngeal reposturing with voicing on fundamental frequency and estimated vocal tract length in transmasculine speakers
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Factors affecting outcomes for semantic feature analysis treatment in post-stroke bilingual aphasia
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Relationship between vocal pitch acuity and voice onset time in speakers with vocal hyperfunction
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Behavioral and neural effects of intensive cognitive and communication rehabilitation in young college-bound adults with acquired brain injury
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Varying degrees of cognitive control and its impact on lexical access during verbal fluency tasks in bilingual persons with aphasia
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Charlie Chaplin and gesture training in severe aphasia: A controlled double-blind single-case experimental design
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In: ISSN: 1877-0657 ; Annals of Physical and Rehabilitation Medicine ; https://hal.archives-ouvertes.fr/hal-03652710 ; Annals of Physical and Rehabilitation Medicine, Elsevier Masson, 2021, 64 (1), pp.101356. ⟨10.1016/j.rehab.2019.12.010⟩ (2021)
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Language recovery through a two-stage awake surgery in an aphasic patient with a voluminous left fronto-temporo-insular glioma: case report
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In: ISSN: 0001-6268 ; EISSN: 0942-0940 ; Acta Neurochirurgica ; https://hal.archives-ouvertes.fr/hal-03294416 ; Acta Neurochirurgica, Springer Verlag, 2021, 163 (11), pp.3115-3119. ⟨10.1007/s00701-021-04932-x⟩ (2021)
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Human Beatbox: from extreme use of voice and speech to its use in speech therapy ; Le Human Beatbox : d’une utilisation extrême de la voix et de la parole à son utilité en orthophonie
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In: ISSN: 0034-222X ; Rééducation orthophonique ; https://hal.archives-ouvertes.fr/hal-03377693 ; Rééducation orthophonique, Ortho édition, 2021, Rééducation orthophonique n°286 - Les phonations : sur la voie des voix, 286 ; https://www.orthoedition.com/revues/n-les-phonations-sur-la-voie-des-voix-4341.html (2021)
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Utilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: the RELEASE database of aphasia after stroke
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WILLIAMS, Louise R.; ALI, Myzoon; VANDENBERG, Kathryn; WILLIAMS, Linda J.; ABO, Masahiro; Becker, Frank; BOWEN, Audrey; BRANDENBURG, Caitlin; BREITENSTEIN, Caterina; BRUEHL, Stefanie; COPLAND, David A.; CRANFILL, Tamara B.; DI PIETRO-BACHMANN, Marie; ENDERBY, Pamela; FILLINGHAM, Joanne; GALLI, Federica Lucia; GANDOLFI, Marialuisa; Glize, Bertrand; GODECKE, Erin; Hawkins, Neil; HILARI, Katerina; HINCKLEY, Jacqueline; Horton, Simon; Howard, David; JAECKS, Petra; Jefferies, Elizabeth; JESUS, Luis M. T.; Kambanaros, Maria; KANG, Eun Kyoung; KHEDR, Eman M.; KONG, Anthony Pak-Hin; KUKKONEN, Tarja; Laganaro, Marina; RALPH, Matthew A. Lambon; LASKA, Ann Charlotte; LEEMANN, Beatrice; LEFF, Alexander P.; LIMA, Roxele Ribeiro; Lorenz, Antje; MACWHINNEY, Brian; MARSHALL, Rebecca Shisler; MATTIOLI, Flavia; MAVIS, Iiknur; MEINZER, Marcus; NILIPOUR, Reza; NOE, Enrique; PAIK, Nam Jong; PALMER, Rebecca; PAPATHANASIOU, Ilias; PATRICIO, Brigida F.; MARTINS, Isabel Pavao; PRICE, Cathy; JAKOVAC, Tatjana Prizl; ROCHON, Elizabeth; ROSE, Miranda L.; Rosso, Charlotte; RUBI-FESSEN, Ilona; RUITER, Marina B.; SNELL, Claerwen; STAHL, Benjamin; SZAFLARSKI, Jerzy P.; THOMAS, Shirley A.; VAN DE SANDT-KOENDERMAN, Mieke; VAN DER MEULEN, Ineke; VISCH-BRINK, Evy; WORRALL, Linda; WRIGHT, Heather Harris; BRADY, Marian C.; COLLABORATORS, RELEASE
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In: ISSN: 0268-7038 ; EISSN: 1464-5041 ; Aphasiology ; https://hal.archives-ouvertes.fr/hal-03528818 ; Aphasiology, Taylor & Francis (Routledge), 2021, ⟨10.1080/02687038.2021.1897081⟩ (2021)
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Abstract:
Background: Collation of aphasia research data across settings, countries and study designs using big data principles will support analyses across different language modalities, levels of impairment, and therapy interventions in this heterogeneous population. Big data approaches in aphasia research may support vital analyses, which are unachievable within individual trial datasets. However, we lack insight into the requirements for a systematically created database, the feasibility and challenges and potential utility of the type of data collated. Aim: To report the development, preparation and establishment of an internationally agreed aphasia after stroke research database of individual participant data (IPD) to facilitate planned aphasia research analyses. Methods: Data were collated by systematically identifying existing, eligible studies in any language (>= 10 IPD, data on time since stroke, and language performance) and included sourcing from relevant aphasia research networks. We invited electronic contributions and also extracted IPD from the public domain. Data were assessed for completeness, validity of value-ranges within variables, and described according to pre-defined categories of demographic data, therapy descriptions, and language domain measurements. We cleaned, clarified, imputed and standardised relevant data in collaboration with the original study investigators. We presented participant, language, stroke, and therapy data characteristics of the final database using summary statistics. Results: From 5256 screened records, 698 datasets were potentially eligible for inclusion; 174 datasets (5928 IPD) from 28 countries were included, 47/174 RCT datasets (1778 IPD) and 91/174 (2834 IPD) included a speech and language therapy (SLT) intervention. Participants' median age was 63 years (interquartile range [53, 72]), 3407 (61.4%) were male and median recruitment time was 321 days (IQR 30, 1156) after stroke. IPD were available for aphasia severity or ability overall (n = 2699; 80 datasets), naming (n = 2886; 75 datasets), auditory comprehension (n = 2750; 71 datasets), functional communication (n = 1591; 29 datasets), reading (n = 770; 12 datasets) and writing (n = 724; 13 datasets). Information on SLT interventions were described by theoretical approach, therapy target, mode of delivery, setting and provider. Therapy regimen was described according to intensity (1882 IPD; 60 datasets), frequency (2057 IPD; 66 datasets), duration (1960 IPD; 64 datasets) and dosage (1978 IPD; 62 datasets). Discussion: Our international IPD archive demonstrates the application of big data principles in the context of aphasia research; our rigorous methodology for data acquisition and cleaning can serve as a template for the establishment of similar databases in other research areas.
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Keyword:
[SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie; Aphasia; Individual participant data; Rehabilitation reporting standards; Speech and language therapy; Stroke
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URL: https://hal.archives-ouvertes.fr/hal-03528818
https://hal.archives-ouvertes.fr/hal-03528818/file/BPH_Aphasiology_2021_Williams.pdf
https://hal.archives-ouvertes.fr/hal-03528818/document
https://doi.org/10.1080/02687038.2021.1897081
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Skraban-Deardorff syndrome: six new cases of WDR26-related disease and expansion of the clinical phenotype
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In: ISSN: 0009-9163 ; EISSN: 1399-0004 ; Clinical Genetics ; https://hal.archives-ouvertes.fr/hal-03134882 ; Clinical Genetics, Wiley, 2021, 99 (5), pp.732-739. ⟨10.1111/cge.13933⟩ (2021)
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A systematic review of repetitive transcranial magnetic stimulation in aphasia rehabilitation: leads for future studies
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In: ISSN: 0149-7634 ; Neuroscience and Biobehavioral Reviews ; https://hal.archives-ouvertes.fr/hal-03267500 ; Neuroscience and Biobehavioral Reviews, Elsevier, 2021, 127, pp.212-241. ⟨10.1016/j.neubiorev.2021.04.008⟩ (2021)
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Reliability of perceptual measurement of Apraxia of Speech characteristics
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Speech Treatment Effects on Narrative Intelligibility in French-Speaking Children with Dysarthria.
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Effects of Speech Cues on Acoustics and Intelligibility of Korean-speaking Children with Dysarthria
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Perceptual and acoustic effects of dual-focus speech treatment in children with dysarthria
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Advancing efficient and equitable intervention for children with phonological disorder
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