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An aphasia research agenda – a consensus statement from the collaboration of aphasia trialists
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In: Research outputs 2014 to 2021 (2022)
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Creating a theoretical framework to underpin discourse assessment and intervention in aphasia
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In: Research outputs 2014 to 2021 (2021)
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Treatment for improving discourse in aphasia: A systematic review and synthesis of the evidence base
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In: Research outputs 2014 to 2021 (2021)
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Intensive Comprehensive Aphasia Programmes: a systematic scoping review and analysis using the TIDieR checklist for reporting interventions ...
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Intensive Comprehensive Aphasia Programmes: a systematic scoping review and analysis using the TIDieR checklist for reporting interventions ...
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Development of a self-management intervention for stroke survivors with aphasia using co-production and behaviour change theory: An outline of methods and processes
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In: PLoS One (2021)
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Abstract:
BACKGROUND: Self-management is a promising approach to improve quality of life after stroke. However, evidence for the appropriateness and effectiveness of self-management for stroke survivors with aphasia is limited. This article reports on the process used to develop a supported self-management intervention for stroke survivors with aphasia (SSWA) using co-production and behaviour change theory. Preparatory research included systematic reviews, and qualitative interviews and focus groups with SSWA, family members and speech and language therapists (SLTs). MATERIALS AND METHODS: We conducted six, 2 hour long intervention development workshops with key stakeholders. The workshops were informed by principles of co-production and the intervention development process outlined by the Behaviour Change Wheel (BCW). We also incorporated the findings of our preparatory research within workshops. Each workshop included an introduction, 1–2 co-production tasks and time for feedback at the end of the session. Data were analysed on an ongoing basis so that findings could be used to feed in to subsequent workshops and intervention development. RESULTS: Workshop participants (n = 12) included; SSWA (n = 5), family members (n = 3) and SLTs (n = 4). Together, participants engaged with accessible and participatory co-production tasks which aligned with the BCW framework. Participants engaged in discussion to define self-management in behavioural terms (behavioural diagnosis) and to identify what needed to change to support self-management. Participant’s co-produced solutions for supporting self-management and discussed options to implement these in practice. Prototype materials were generated by the research team and evaluated by participants. Intervention functions and behaviour change techniques (BCTs) were mapped to the solutions generated by participants by the research team, after the final workshop. A supported self-management intervention for SSWA was developed which will be delivered by SLTs through community stroke services. CONCLUSIONS: This paper reports the process we used to integrate co-production work with behaviour change theory to develop a complex self-management intervention. This is of relevance for researchers looking to harness the strengths of co-production methods and theory in intervention design. Future research will feasibility test the supported self-management intervention developed. This paper provides transparency to our intervention development process which will help others to better interpret the findings of our feasibility work.
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Keyword:
Research Article
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URL: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8610248/
http://www.ncbi.nlm.nih.gov/pubmed/34813602
https://doi.org/10.1371/journal.pone.0259103
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Treatment fidelity of technology-enhanced reading therapy (CommuniCATE) for people with aphasia
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Delivering group support for people with aphasia in a virtual world: experiences of service providers.
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Preliminary outcomes from a pilot study of personalised online supported conversation for participation intervention for people with Aphasia
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Creating a Theoretical Framework to Underpin Discourse Assessment and Intervention in Aphasia
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In: Brain Sci (2021)
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Assessing Parent Behaviours in Parent–Child Interactions with Deaf and Hard of Hearing Infants Aged 0–3 Years: A Systematic Review
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In: J Clin Med (2021)
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Assessing Parent-Child Interaction in Infant Deafness
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In: Curr Opin Otolaryngol Head Neck Surg (2021)
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An aphasia research agenda - a consensus statement from the collaboration of aphasia trialists.
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In: Ali, Myzoon Soroli, Efstathia Jesus, Luis M. T. Cruice, Madeline Isaksen, Jytte Visch-Brink, Evy Grohmann, Kleanthes K. Jagoe, C. Kukkonen, Tarja Varlokosta, Spyridoula Hernández Sacristán, Carlos Rosell Clari, Vicent Palmer, Rebecca Martinez Ferreiro, Silvia Godecke, Erin Wallace, Sarah J. McMenamin, Ruth Copland, David Breitenstein, Caterina Bowen, Audrey Laska, Ann-Charlotte Hilari, Katerina Brady, Marian C. 2021 An aphasia research agenda - a consensus statement from the collaboration of aphasia trialists. Aphasiology 1 21 (2021)
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UK speech and language therapists' views and reported practices of discourse analysis in aphasia rehabilitation
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In: Research outputs 2014 to 2021 (2020)
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Establishing consensus on a definition of aphasia: an e-Delphi study of international aphasia researchers
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A core outcome set for aphasia treatment research: The ROMA consensus statement
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In: Research outputs 2014 to 2021 (2019)
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Technology‐enhanced reading therapy for people with aphasia: findings from a quasi‐randomized waitlist controlled study
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Technology-enhanced writing therapy for people with aphasia: results of a quasi-randomized waitlist controlled study
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Increasing the intensity and comprehensiveness of aphasia services: identification of key factors influencing implementation across six countries
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Reporting interventions in communication partner training: a critical review and narrative synthesis of the literature
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